Friday, February 20, 2009

Update

Chris began an 8 day hospital stay on Feb 10 and
returned home two days ago. The treatment in the hospital was very
difficult and I felt that he needed someone by his side 24/7 for the
first five days or so because he was so heavily sedated and basically
helpless, but still had moments where he would come out of it a bit and
be unable to find the call button for the nurses (who were generally
wonderful but understaffed). Several of you came to the hospital to
visit or take shifts with him, and I can't thank you enough for that.
It meant so much to him and it was a great comfort to me knowing that
you were there while I was dealing with my other responsibilities, not
the least of which was spending time with the kids, who are
understandably a little freaked out by all this. Many of you also took
the kids for certain periods during the hospital stay so that I could be
with Chris, and that was just as valuable to us. Many, many thanks.

We had hoped to see great improvement after the treatment but it appears
that at best we have only slowed down the progression of the disease
(CRPS II). This does not mean that he won't improve over the coming
weeks and months, but it has been a disappointment for us that the pain
has not subsided much. He is currently on an intense cocktail of
medications designed to reduce pain, inflammation, anxiety, muscle
cramping, etc. These are serious meds that currently leave him somewhat
"altered" and give him trouble with memory, motor function, and so on.
Basically he is pretty loopy. Between the pain and the meds he is
unable to care for the kids on his own at this point, so I am in need of
backup kid care on occasion.

He has had good moments and bad moments since coming home. He is trying
very hard to remain optimistic, but he slides back every so often,
especially at night. We both slept well last night though, which has
helped us to start this morning with some energy and hope. We are
waiting for the medication regime to settle in with his body and we
expect that he will get more used to it and that it will become more
effective. We are pursuing physical therapy and other healing
modalities that we hope will help him. And of course we are counting on
the "tincture of time" to be a great source of healing. In the short
term, we are developing coping strategies for each of us that are
designed to minimize stress, which exacerbates his pain.

So that's where we stand today. As for the farm, we are going to take a
look at our plans for this season and we will obviously have to
streamline our activities. But the reality is that the farm must be a
source of income for us this year and the show must go on! The season
is beginning now and there are even some things to start planting over
the next few weeks.

One thing we are going to do right away is build the bedrooms on the
West side of the house. The kids are past being ready for their own
rooms, and we have decided to build a third room that will provide
housing for a live-in farm intern. This week my mom and I are working
on clearing out all the toys and clutter from that side of the house so
that we can begin construction ASAP.

Sunday, February 08, 2009

Struggling

Ah, it's sure been a while. I was alerted to this fact by my dear friend Crystal, who has my blog listed in her sidebar along with how long it's been since I've posted here. Yikes. 5 weeks.

So I uploaded the photos from my camera, which dated from just before Christmas, so I could do a few blog posts. Problem is, I can't do it yet. There are photos from New Year's Day where we blew the steam whistle in our annual tradition for good luck, but those are too hard for me to look at right now because things took a turn for us just a week later.

Here is the last photo that I took "before."


It was a delicious dinner that I made especially for Chris from our own chicken and potatoes. Yummy hot wings. We had a great night that night--we felt so hopeful and optimistic for this year because Chris was finally going to leave his stressful job and we were going to become full time farmers.

Unfortunately, two days later he was injured in a farm accident. He should have healed within a week or two--or at least been able to move around and so on--but the injury has caused a horrible side effect called CRPS, or Complex Regional Pain Syndrome, also known as causalgia. It's a nasty nerve disease where he suffers from unbearable pain in his foot and lower leg (the injury was to his upper leg) because of nerve damage. Look it up--it really sucks. It's now over a month later and he has been severely disabled ever since then. It is getting worse every day.

Tuesday he goes into the hospital for several days for an aggressive treatment designed to stop or slow down the progression of the disease. All we can do is hope that it helps at least enough to let him walk without crutches.

I really want to get back into posting here soon. We have actually been getting a few things done, even so far as installing the greenhouse film! We are not letting this stop us, but I must admit that life is definitely challenging at the moment. Hopefully we'll see some improvement in his pain and mobility by this time next week and I'll be able to catch up with the blog.

For now, please send healing thoughts our way, or pray if you are so inclined. We are strengthened by everyone's support, even from far away!